Parent-Professional Partnerships

Parents' questions to clinicians within paediatric hearing habilitation appointments for children with hearing impairment (2020)

  • This article talks about...the content of questions that caregivers asked clinicians during appointments, including the type of question asked and implications of those questions.
  • The study found...that clinicians did not often inquire if caregivers had questions. It also found that parent’s questions often indicated that more than answers were being sought by parents. Meaning that, through the content of their questions some caregivers were implying the need for support as well as answers.
  • This is important because...parents need to have an opportunity to ask questions and share their concerns. This information allows clinicians to offer necessary and relevant support. It is also important for clinicians to recognize when caregiver’s questions prompt the need for support.
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Pediatric Amplification Management: Parent Experiences Monitoring Children’s Aided Hearing (2019)

  • This article talks about...parent experiences managing hearing aids (HA), bone conduction hearing aids (BCHA) and cochlear implants, for children birth to three years of age.
  • This study found...that parents vary in how often they check their child’s hearing devices. A common problem expressed by parents was being unsure about how the device was working. Parents wanted professionals to provide detailed information about their child’s condition as well as access to parent support groups. They also wanted information about pediatric physicians in the area and regular data logging to be performed.
  • This is important because...parents need support from their audiologist as they develop habits to manage daily hearing device routines. Providing the proper education and resources can help parents better meet the needs of their child and cope with their child’s hearing loss.
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Parent perspectives on multidisciplinary pediatric hearing healthcare (2019)

  • This article talks about...results from a survey for parents participating in a multidisciplinary clinic for children with hearing loss. This multidisciplinary clinic included audiologists, ear doctors, speech language pathologists, and social workers.
  • This study found...results were variable. Some parents enjoyed being able to see multiple providers for one visit, while others found that the visit was too long, and they would have preferred to split up the appointments into separate visits. Results also revealed that many parents did not remember all the specialists that their child saw in a visit.
  • This is important because...when working with parents in a multidisciplinary clinic it is important for the clinic to work with parents to provide services in the way parents prefer. This will be individual for each patient but may result in better outcomes for children being served at multidisciplinary clinics.
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Comparing Parent and Teacher Ratings of Emotional and Behavioural Difficulties in 5-Year Old Children Who Are Deaf or Hard-of-Hearing (2018)

  • This article talks about...parent and teacher perspectives on children’s language, emotions, behavior, auditory performance, and non-verbal cognitive ability. The survey included 224 5-year old children who used hearing aids or cochlear implants before they were 3-years old.
  • This study found...that parents reported issues with behavior and conduct more often than teachers. Teachers were more likely to report on issues with prosocial behaviors (i.e. initiating social interactions) than parents.
  • This is important because...parents and educators may experience various difficulties because of their different roles in a child’s life. It is important for parents and educators to work together to share concerns and create plans to help children who are deaf or hard of hearing meet educational and behavioral goals at home and at school.
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Parent-directed commentaries during children’s hearing habilitation appointments: a practice in family-centered care (2018)

  • This article is about...how clinicians included parents in intervention sessions.
  • The study found...that engaging parents in hearing appointments helped to reassure them of their child’s progress. It also allowed the clinician to share information and provide emotional support for the parents. Overall the study showed that parent directed comments helped to keep the appointment environment positive and optimistic.
  • This is important because...professional providers can help parents learn ways to help their child at home through including parents in intervention sessions. Professionals can also help parents feel at ease by keeping the environment optimistic through emphasizing the child’s successes.
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Parental involvement in the care and intervention of children with hearing loss (2018)

  • This article is about...the role parents have in the lives of children with hearing loss.
  • The study found...that parents are very involved in and responsible for helping their child with hearing loss.
  • This is important because...this helps parents that are new to hearing loss know what they might need to do to help their children succeed.
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Eliciting Family Concerns and Priorities through the Routines-Based Interview (2017)

  • This article is about...discovering family routines and concerns centered around those routines through interviews.
  • The study found...that daily routines are not independent of one another, rather they interact. Helping families maintain routines that are important to them allows family members to have improved quality of life.
  • This is important because...when a child has a hearing loss it can impact daily family routines. Not only are families faced with daily maintenance tasks but may also need to attend additional intervention programs and doctor’s appointments. Professionals and parents need to work together to incorporate the child’s hearing needs into already established daily routines when possible.
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Audiologists' communication behavior during hearing device management appointments (2017)

  • This article is about...audiologists' communication with parents and adult patients during hearing device-monitoring appointments before and after training on counseling skills.
  • The study found...that counseling training helped audiologists provide parents with more opportunities to talk during the appointment. Other important counseling skills did not change. Audiologists infrequently used counseling skills such as checking on and addressing patient emotions.
  • This is important because...audiologists need to use counseling skills to help parents work through challenges they experience related to their child’s hearing loss. Training programs need to consider the support audiologists may need to implement skills routinely in practice.
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Parents' perspective of the early diagnostic period of their child with hearing loss: information and support (2017)

  • This article is about...parent perspectives of their experience with audiologists after their child was diagnosed with hearing loss.
  • The study found...that this experience was difficult emotionally for parents. Most parents felt satisfied with the verbal and written support from audiologists; however, some parents felt dissatisfied.
  • This is important because...attending to parents’ information and emotional support needs helps them make informed decisions and cope as they learn how to help their child.
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The First Step to Early Intervention Following Diagnosis: Communication in Pediatric Hearing Aid Orientation Sessions (2017)

  • This article is about...information provided during hearing aid orientation, how audiologists communicated with the parents, and what parents understood.
  • The study found...parents did not remember or understand much information from that first hearing aid appointment. Parents also lacked confidence doing the skills they were taught.
  • This is important because...audiologists can modify how they teach parents. Providing written information and checking in with parents after their appointment can help parents work through challenges that arise.
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